Robyn and the Gruffalo
Been a bit of pressure this time round to get a PEG tube (feeding tube surgically placed into her stomach) fitted. They sent someone down to talk us through the tubes. However all it did was solidify for us that we are NOT having it done the way they want.
The PEG is a long tube similar to the one in her nose. We had been told that it would stay in for six weeks while the operation site healed and would then be changed for a 'button' which does the same job but sits flush against the outside of her stomach with no external tubing. We want to skip the tubing stage and go straight to having a button. It stops us swapping one tube for another and also reduces the number of times She needs to be under anaesthetic. But Ninewells wont fit a Button in the primary site, it can only be done at a childrens hospital so it looks like IF we go ahead with fitting a G-tube then we will be combining it with her ENT surgery at Yorkhill. Might not be a bad thing though really.